, , , ,

Stimming: Why do Autistic people need it?

What purpose does stimming serve? Is it something we should be trying to stop? What should we do if stimming becomes harmful? This piece answers those questions.

When thinking about core characteristics shared by Autistic people, I would suggest that nothing is as prominent as stimming. Stimming, or “self-stimulatory behaviour” shares an intimate relationship with Autistic experience.

“Stimming or self-stimulating behaviour includes arm or hand-flapping, finger-flicking, rocking, jumping, spinning or twirling, head-banging and complex body movements. 

It includes the repetitive use of an object, such as flicking a rubber band or twirling a piece of string, or repetitive activities involving the senses (such as repeatedly feeling a particular texture).”

National Autistic Society (2020)

Stimming is often reduced to physical motions or vocalisations. In fact, we can stim using any of our senses. One that has been spoken about in particular on this website is interoceptive stimming (Gray-Hammond & Adkin, 2023). We can stim off of emotions and internal bodily feelings in the same way we might with hand flapping or vocalisations. While stimming is widely talked about in Autistic spaces, the question in wider society remains; why do Autistic people stim?

What are the benefits of stimming for Autistic people?

There is no singular benefit of this particular behaviour in Autistic people. It should also be noted that it is not unique to Autistic people, but certainly appears to be a more frequent occurrence for Autistic people (Oroian et al, 2024; Charlton et al, 2021). There are however some notable benefits of stimming;

Emotional Regulation and Expression

Stimming may be used as a way of not only expressing emotions, such as the flapping of a child’s hands when excited, but also as a way of regulating emotions. Autistic people can often experience alexithymia (Gray-Hammond, 2023), presenting a challenge to how they respond to emotions. Research has suggested that stimming allows Autistic people to regulate and relax, or even distract from negative emotions, experiencing more positive emotional outcomes (Charlton et al, 2024; McCarty & Brumback, 2021; Petty & Ellis, 2024).

Sensory Regulation

The sensory experience of being Autistic in the world can be imagined as a ship in unpredictable and dangerous seas. Stimming provides an anchor that allows Autistic people to take a moment without the fear of drifting into catastrophe. Sensory experiences can be traumatic (Fulton et al, 2020). Stimming allows us to exercise autonomy in unpredictable and traumatic environments. By initiating a sensory experience, we are better able to cope with other sensory information (Charlton et al, 2024; McCarty & Brumback, 2021; Petty & Ellis, 2024).

Increased Bodily Awareness

Autistic people can often struggle with bodily awareness, likely due to differences with proprioception and interoception (Armitano-Lago et al, 2021; Hatfield et al, 2019). Some Autistic stims may actually help increase our awareness of our body (Petty & Ellis, 2024). This is interesting when considering the community created concept of the “burnout to psychosis” (Adkin & Gray-Hammond, 2023) cycle which features reduced interoception, allowing us to posit that increased body awareness may reduce negative mental health outcomes.

The burnout to psychosis cycle, showing monotropic split, leading to reduced interoception, which the author posits can be mitigated through Autistic stimming, leading to meerkat mode, then monotropic spiral and psychosis

Enjoyment

Stimming is not purely functional. It can also be something performed for enjoyment and pleasure. Much int he way someone might sing when they are on their own, Autistic people may stim because they like and enjoy the way it makes them feel (Petty & Ellis, 2024).

Why we shouldn’t suppress stimming

When an Autistic person is not allowed to stim, we are taking away an important tool for their healthy engagement in the world (McCarty & Brumback, 2021). One paper describes the suppression of stimming as being similar to holding back words that you desperately need to say (Charlton et al, 2024). From a personal perspective, not being allowed to stim feels similar to holding your breath for too long. It becomes a source of distress and panic. Autistic people widely reject the suppression or behavioural elimination of stimming (Kapp et al, 2019).

Not all stimming is positive

It’s important to note at this point that some stims can be injurious or otherwise harmful. From head-bang, to biting, to skin picking. Distressed Autistic people can hurt themselves in the attempt to cope with difficult experiences and emotions. It has also been discussed on this website how substance use behaviours can be related to harmful stimming (Gray-Hammond, 2024).

Unfortunately harmful stims are highly stigmatised, particularly in children (Marsden et al, 2024) often being used as examples of why stimming should be eliminated. Community spaces actually tend to recommend that the more helpful thing to do in these situations is establish what purpose the stim serves, particularly from a sensory perspective, and to redirect it into a healthier stim that provides a similar feedback.

Why we need to be okay with Stimming

Ultimately, this is a matter of somatic liberty. We have to recognise that people, regardless of neurocognitive style or perceived level of disability, have the right to bodily autonomy. Neurotypically performing people can probably relate to other issues surrounding bodily autonomy, but may not necessarily understand this situation. Being told how to embody yourself, down to the subtle movements, noises, and sensory experienced you have is deeply traumatic. When we teach our children not to stim, we teach them to be alienated from their bodies. We teach them that their bodies do not belong to them. I, personally, think that claiming ownership of another’s body is one of the most harmful things we can do.

References

Adkin, T. & Gray-Hammond, D. (2023) Creating Autistic Suffering: The AuDHD Burnout to Psychosis Cycle- A deeper look. Emergent Divergence. Retrieved from https://neurohubcommunity.org/2023/06/05/creating-autistic-suffering-the-audhd-burnout-to-psychosis-cycle-a-deeper-look/

Armitano-Lago, C., Bennett, H. J., & Haegele, J. A. (2021). Lower limb proprioception and strength differences between adolescents with autism spectrum disorder and neurotypical controls. Perceptual and motor skills128(5), 2132-2147.

Charlton, R. A., Entecott, T., Belova, E., & Nwaordu, G. (2021). “It feels like holding back something you need to say”: Autistic and Non-Autistic Adults accounts of sensory experiences and stimming. Research in Autism Spectrum Disorders89, 101864.

Fulton, R., Reardon, E., Kate, R., & Jones, R. (2020). Sensory trauma: Autism, sensory difference and the daily experience of fear. Autism Wellbeing CIC.

Gray-Hammond, D. (2023). What is alexithymia? Emergent Divergence. Retrieved from https://neurohubcommunity.org/2023/06/30/what-is-alexithymia/

Gray-Hammond, D. (2024). Interoception and Autism: A Hidden Link to Substance Use? Emergent Divergence. Retrieved from https://neurohubcommunity.org/2024/05/21/interoception-and-autism-a-hidden-link-to-substance-use/

Gray-Hammond, D. & Adkin, T. (2023) Creating Autistic Suffering: Interoceptive Stimming or "challenging behaviour"? Emergent Divergence. Retrieved from https://neurohubcommunity.org/2023/09/18/creating-autistic-suffering-interoceptive-stimming-or-challenging-behaviour/

Hatfield, T. R., Brown, R. F., Giummarra, M. J., & Lenggenhager, B. (2019). Autism spectrum disorder and interoception: Abnormalities in global integration?. Autism23(1), 212-222.

Kapp, S. K., Steward, R., Crane, L., Elliott, D., Elphick, C., Pellicano, E., & Russell, G. (2019). ‘People should be allowed to do what they like’: Autistic adults’ views and experiences of stimming. Autism23(7), 1782-1792.

Marsden, S. J., Eastham, R., & Kaley, A. (2024). (Re) thinking about self-harm and autism: Findings from an online qualitative study on self-harm in autistic adults. Autism, 13623613241271931.

McCarty, M. J., & Brumback, A. C. (2021, July). Rethinking stereotypies in autism. In Seminars in pediatric neurology (Vol. 38, p. 100897). WB Saunders.

National Autistic Society. (2020). Stimming – a guide for all audiences. Retrieved from https://www.autism.org.uk/advice-and-guidance/topics/behaviour/stimming/all-audiences

Oroian, B. A., Costandache, G., Popescu, E., Nechita, P., & Szalontay, A. (2024). Comparative analysis of self-stimulatory behaviors in ASD and ADHD. European Psychiatry67(S1), S220-S220.

Petty, S., & Ellis, A. (2024). The meaning of autistic movements. Autism, 13623613241262151.

Author

  • David Gray-Hammond

    David Gray-Hammond is an Autistic, ADHD, and Schizophrenic author. He wrote “The New Normal: Autistic musings on the threat of a broken society” and “Unusual Medicine: Essays on Autistic identity and drug addiction”.

    He runs the blog Emergent Divergence (which can be found at https://emergentdivergence.com ) and is a regular educator and podcast host for Aucademy.

    He runs his own consultancy business through which he offers independent advocacy, mentoring, training, and public speaking.

    He has his own podcast “David’s Divergent Discussions” and can also be found on substack at https://www.davidsdivergentdiscussions.co.uk

Response to “Stimming: Why do Autistic people need it?”

  1. Vernon Taylor

    I remember reading the wisdom of somebody years ago that the education of a special needs person should, if at all possible, lead to them being able by the age of majority, to deal with the world and it’s people as they are and not as the subject would prefer them to be.
    A considerable number of people in the ordinary world are intolerant, impatient and uncomfortable with special needs people, sometimes as uncomfortable as each other. Ideally, part of dealing with the world of it is, is being able to explain yourself to others, ie. physical ticks, repetitive gestures and so forth.
    It is a complex subject with many sub-headings but it is highly desirable the different worlds of people get on with each other and value their own and others dignity and to achieve that, the “normal” world needs as much education, if not more, than the special needs world.

Leave a Reply

Discover more from NeuroHub Community Ltd

Subscribe now to keep reading and get access to the full archive.

Continue reading